Department of Health and Human Services  
Public Health Administration  
Administrative Rules for Amyotrophic Lateral Sclerosis (ALS) Reporting  
Rule Set 2022-13 HS  
NOTICE OF PUBLIC HEARING  
Wednesday, February 12, 2025  
09:00 AM  
South Grand Tower Building Room 1I  
333 South Grand Avenue, Lansing, Michigan 48933  
The Department of Health and Human Services will hold a public hearing to receive public comments on  
proposed changes to the Amyotrophic Lateral Sclerosis (ALS) Reporting rule set.  
These new rules would establish requirements for reporting Amyotrophic Lateral Sclerosis (ALS) to the  
Michigan Department of Health and Human Services. ALS is a progressive, degenerative, neurological  
disease. These rules would establish a statewide ALS case registry based on data collection of patients  
with ALS, identified by neurologists, hospitals, ALS clinics, and vital records. The ALS case registry  
would provide data for public health surveillance and provide researchers with standardized and  
comprehensive data aimed at identifying risk factors and prevention strategies.  
By authority conferred on the Department of Health and Human Services by sections 2226, 2233, and  
5111 of the Public Health code, 1978 PA 368, MCL 333.2226, 333.2233, and 333.5111.  
The proposed rules will take effect immediately after filing with the Secretary of State. The proposed  
rules are published on the State of Michigan's website at www.michigan.gov/ARD and in the 2/1/2025  
issue of the Michigan Register. Copies of these proposed rules may also be obtained by mail or  
electronic mail at the following email address: [email protected].  
Comments on these proposed rules may be made at the hearing, by mail, or by electronic mail at the  
following addresses until 2/14/2025 at 05:00PM.  
Department of Health and Human Services Attn: Mary E. Brennan/Beth Anderson  
MDHHS Grand Tower Building 235 S. Grand Avenue- 2nd Floor-Legal Affairs Administration, Lansing, MI  
48933  
MDHHS-AdminRules@michigan.gov  
The public hearing will be conducted in compliance with the 1990 Americans with Disabilities Act. If the  
hearing is held at a physical location, the building will be accessible with handicap parking available.  
Anyone needing assistance to take part in the hearing due to disability may call 517-335-4276 to make  
arrangements.  
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