JCAR PACKAGE WRITTEN
COMMENTS/DHHS RESPONSE-ALS
NAME OF PERSON PROVDING
COMMENTS
ORGANIZATION
RULE NUMBER
COMMENT
DHHS RESPONSE
Doris Allen; William Allen, M;, Sheri
Mark-Slaim RN, JD, President; Hilary
King; Christina Clark; Jon Gerych;
James Hiller, J.D.; Clifford Lampe,
Ph.D.; Paula Morning-Carter;
University of Michigan-ALS General Comment
Center of Excellence
The National Advisory Board of the ALS DHHS in support of the written comments.
Center of Excellence at
Michigan Medicine/University of
Michigan is writing this letter in full
support of the state of Michigan moving
forward in making ALS a
Scott Pranger; Lisa Rosenberg;
Brian Roth, D.O.; John Scarbrough.
Comment sent by Mike Ritter, U of M.
reportable disease through a formal
registry, and with Rule Set 2022-13
HS. We believe that the data collected
by this registry will assist ALS
physicians and ALS researchers in
Michigan in their mission to find
identifiable risk factors for the disease,
leading to possible effective
treatments or prevention. Each member
of this Board has had ALS touch
their lives in a personal way, so we are
very aware of the devastation of
this disease and lack of effective
treatments to date.
Without data collected by the MDHHS,
we will not know where clusters
of disease may be occurring, what
elements these cases have in common,
and where
Ximena Arcila-Londono, MD
Director,
ALS Directors at Various General Comment
Medical Facilities
As directors of the major ALS Clinics in DHHS is in support of the written
the State of Michigan, we are writing to comments.
convey our strongest support for making
amyotrophic lateral sclerosis (ALS) a
reportable disease in Michigan. ALS is a
debilitating neurodegenerative disease
that involves progressive loss of motor
neurons that control voluntary muscle
function. Its unrelenting and ultimately
fatal nature requires evolving
Harry J. Hoenselaar ALS Clinic
Henry Ford Health Neuroscience
Brian Callaghan, MD, MS
Director, Multidisciplinary ALS Clinic
VA Ann Arbor Health System
Michelle Crooks, MD
Medical Director, Bronson
Neuroscience Bronson
Stephen Goutman, MD, MS
Director, Pranger ALS Clinic
University of Michigan Medicine
Melanie Taylor, MD
Director, Hauenstein Neurosciences
ALS Clinic
multidisciplinary support as the disease
advances, but barriers to acquiring this
multidisciplinary care have a significant
impact on quality of life for all impacted
by ALS.
Trinity Health
Paul Twydell, DO
Director, ALS Clinic
Neurosciences Integrated Care
Campus-Beltline
Corewell Health Medical Group
Comment sent by Mike Ritter, U of M
